The Partnership for Palliative Care Privacy Policy

 

Our Commitment to Privacy

The Partnership for Palliative Care (“The Partnership”) seeks to ensure that no American is denied quality of life by the serious symptoms of major illness. We are a new national organization that is spearheading a movement to expand palliative care across the health care system. We realize that by requesting you share personal information with us we are asking a lot. In order to begin to earn your trust, we provide this privacy policy explaining our online information practices and the choices you can make about the way your information may be collected and used. We promise to protect information that personally identifies you (“Personal Information”) with the same vigor we would employ to protect our own.

If users have questions or concerns regarding this privacy policy, you should first contact info@partnershipforpalliativecare.org.

We will inform you of the following in this privacy policy:

  • What information the Partnership collects
  • Who is collecting the information
  • How the Partnership will use the information we collect
  • With whom the information may be shared
  • What choices you have regarding collection, use and distribution of your information
  • What kind of security procedures the Partnership has in place to protect the loss, misuse or alteration of information under our control
  • How you can correct any inaccuracies in the information

Information Collection

The Partnership is the sole owner of the information collected on www.restoringqualityoflife.org. We collect information from our users at several different points on our website as described below. The Partnership does not share, sell, or trade Personal Information with third parties for promotional purposes.

Registration

You may use much of The Partnership website without registering or submitting any Personal Information. In that case, the only information we collect will be non-personal information collected through the use of cookies (see details below).

We currently offer registration to our mailing list which provides you with access to periodic e-newsletters or other updates we believe important to our subscribers. This information is stored securely in our user profile database.

You can always opt-out of receiving such emails or unsubscribe to newsletters by clicking the “unsubscribe” link found at the bottom of each newsletter or correspondence.

Share Information

When you register to join The Partnership mailing list, you will be directed to a page that requests that you share information about yourself. This information is critical to our mission and we hope that by demonstrating our commitment to your privacy, security, and anonymity, you will feel secure and willing to share this information about yourself. This information is entirely optional and will not in any way limit your ability to utilize the site or any of its features whatsoever. This optional personal information will be stored in our user profile database. You will also be able to change or update this personal information at any time by clicking the appropriate links at the bottom of each e-newsletter or email from The Partnership.

Your information is secure and encrypted and will never be shared with any third party in association with any means to personally identify you unless you expressly request The Partnership do so in order to involve you in an offline initiative you elect to participate in.

What are Cookies?

A cookie is a piece of data stored on the user’s computer tied to information about the user. We use both session ID cookies and persistent cookies. For the session ID cookie, once users close the browser, the cookie simply terminates. A persistent cookie is a small text file stored on the user’s hard drive for an extended period of time. Persistent cookies can be removed by following Internet browser help file directions.

Every computer is assigned a different cookie by The Partnership. The information collected by cookies helps us to statistically monitor usage patterns on our site and selected partners’ sites. We may use cookie information to target certain information to your browser or to determine the popularity of certain content. However, cookies are not tied to your personally identifiable information.
Your browser software can be set to reject all cookies. Most browsers offer instructions on how to reset the browser to reject cookies in the “Help” section of the toolbar. If you reject our cookie, certain functions and conveniences of our site may not work the way they were intended but you do not have to accept our cookie in order to productively use our site. If you accept our cookie, we will link your user ID to site usage patterns.

Email a Friend

When you use The Partnership’s “Email a Friend” application, The Partnership emails the article or other content you designate to your friend’s email address and lists what you supply as your email address as the sender. The Partnership uses the friend’s email address only for the purpose of sending your friend the email you requested and for no other purpose.

Online Donation

Personally identifiable information collected by The Partnership through the online donation process is voluntary information. We ask you to provide us with your name and email address. We will also give you the opportunity to make your donation “in honor of” or “in memory of’” an individual or group. If you choose to provide this information it will be stored in our database and used only for the purposes of sending you an electronic receipt for your donation. Please note you may choose to be listed by your name or as an anonymous supporter.

When you make an online donation to The Partnership additional personally identifiable information is collected by the third party vendor DemocracyInAction. The Partnership does not have access to the credit card or bank account information you enter on the DemocracyInAction website. The Partnership contracts with DemocracyInAction because we believe DemocracyInAction to be a trusted, reliable, secure source for online donations. We encourage you to read the DemocracyInAction Privacy Policy to learn how DemocracyInAction uses and stores your personally identifiable information. When you make an online donation to The Partnership via DemocracyInAction, DemocracyInAction will notify The Partnership of your donation and provide us with your email address. We will only use this email address to send you an electronic receipt for your donation.

Information Use

We do not share your personal profile information with other third parties.  However, collective trends including your profile will be shared in aggregate form, allowing The Partnership to analyze data from our user population to generate content to better serve our users.

What is Aggregate Information?

The Partnership may provide to third parties non-personal information about you that does not allow you to be identified or contacted and that is combined with the non-personal information of other users. This is what we describe as Aggregate Information.

Disclosure of Your Information

The Partnership will not disclose any Personal Information it gathers from you on our Website except as we have set forth in this Privacy Policy or as requested in writing by you. We may release Personal Information to third parties to comply with valid legal requirements such as a law, regulation, search warrant, subpoena or court order; or in special cases, such as a physical threat to you or others. In the event that we are legally compelled to disclose your Personal Information to a third party, we will notify you unless doing so would violate the law or court order.

Disclosure to The Partnership Third Party Contractors

The Partnership employs third party contractors who sometimes have limited access to your Personal Information in the course of providing products or services to The Partnership. These contractors include technology specialists and analysts that provide us with services, and/or analysis related to improving the operation and managing the maintenance of our Website. These contractors also may have access to your email address to send newsletters to you on our behalf or to send emails to you for purposes such as conducting market research on our behalf.

Access to your Personal Information by these contractors is limited to the information the contractor will require to perform this limited function for The Partnership. The Partnership requires that all third party contractors who have access to such Personal Information sign a contract agreeing to protect the privacy of your Personal Information under the guidelines of this Privacy Policy, and not to use or disclose your Personal Information for any purpose other than providing us with the services for which we have contracted them.

Disclosure to Linked Sites

For your convenience we provide links to websites operated by companies other than The Partnership (“Third Party Websites”). These links may be referenced within content, or placed beside the names or logos of sponsors. The Partnership does not disclose your Personal Information to these Third Party Websites without first obtaining your consent. The Partnership does not endorse and is not responsible for the privacy practices of these sites. If you choose to link to one of these Third Party Websites, you should review the privacy policy posted on the linked site to understand how that Third Party Website collects and uses your Personal Information and to decide whether or not you will agree to the terms of use of Third Party Website.

When The Partnership Will Contact You

When you join the mailing list for The Partnership, you are indicating your consent to permit The Partnership to store your username (email address) and any other additional information you provide in our database.

We may provide periodic email newsletters that will inform you of new content on our site and special programs available through the web or otherwise, that may be of interest to you.

We will contact you in response to any inquiry you make to our support or service staff in regards to any question, suggestion, or comment you may have about this policy or about the site in general. Please use one of the email addresses listed in our Contact Us section to submit any questions, suggestions, or concerns you may have.

Occasionally, we may email you surveys or questionnaires to request feedback that can be used to enhance our site to better serve your needs.

On rare occasions it is necessary to send out a strictly service related announcement. For instance, if our service is temporarily suspended for maintenance, we might send users an email. Generally, users may not opt-out of these communications, though they can deactivate their account in order to stop these communications. However, these communications are not promotional in nature.

Changes to the Privacy Policy

The Partnership will regularly review the Privacy Policy to ensure that it provides an appropriate level of protection for your Personal Information. From time to time, we may make changes to the Privacy Policy to keep it current with industry standards and to ensure it complies with the practices we employ on our site. We will post the date of the most recent revisions on this privacy policy page. We will also post a notice on our Home page of any substantial or significant changes to this policy which would materially affect your rights as described herein. Please check this page from time to time to make sure that you are current and up-to-date on our Privacy Policy. Please keep in mind that your use of our website means that you accept our Privacy Policy and Terms of Use as they may be amended at any time, excluding any substantial or materially significant changes which will otherwise be treated according to this policy.

Policy Relating to Advertising, Children, Public Forums, and Email Communication

Advertising Policy
The Partnership does not host or receive funding from advertising.

Children
We are committed to protecting the privacy of children. This website is not designed or intended to attract children under the age of 13. We do not knowingly or purposefully collect Personal Information from any person under the age of 13.

Public Forums
This Privacy Policy does not protect you from third parties when you join The Partnership on Facebook or Twitter (or participate in discussions on these websites). The Partnership may offer discussion boards on Facebook where users with similar topics for discussion can share information and support one another or where users can post questions for experts to answer. You should be aware that any information shared in a discussion thread, chat room, bulletin board, or other online dialogue is public information and may be seen, disclosed to or collected by third parties that do not adhere to our Privacy Policy. Please think carefully before disclosing any personal information in any public forum.

Emails to The Partnership
This Privacy Policy does not protect you when you send business information, ideas, concepts or inventions to The Partnership by email to the various The Partnership departments listed on the “Contact Us” link on our Website. If you want to keep business information, ideas, concepts or inventions private or proprietary, do not send them in an email to The Partnership. We try to answer every email in a timely manner, but are not always able to do so.

How The Partnership Handles Privacy and Security Internally

We take every precaution to protect your Personal Information. When you provide us with Personal Information, it is protected both online and off-line.

Encryption
Any personal information you provide is encrypted using 128-bit encryption and must be accessed using the SSL (Secure Socket Layer) encryption standard. You can tell that you are on a secure, encrypted page while browsing our site by looking at the lock icon on the bottom of web browsers such as Firefox and Internet Explorer. If the page is secure, the lock is closed; when the page is unencrypted (as it is during standard surfing), the lock becomes un-locked.

Firewalls
To protect against hackers entering our server environment, we have put in place appropriate firewalls. Data contained on our servers is visible only to proprietary applications. Log-in passwords are required by internal staff and are changed on a periodic basis. All internal activity is logged.

Off-line Protection
While we use SSL encryption to protect Personal Information online, we also work very hard to protect Personal Information off-line. Any information we receive, whether defined as Personal Information or not, is restricted in our offices. Only employees who need the information to perform a specific job (for example, our database administrators) are granted access to your Personal Information. ALL of our employees are kept up-to-date on our security and privacy practices. Every quarter, as well as any time new policies are added, our employees are notified and/or reminded about the importance we place on privacy and what they can do to ensure our users’ information is protected.

Government Subpoenas, Warrants or Orders
We reserve the right to disclose your personally identifiable information as required by law and when we believe that disclosure is necessary to protect our rights and/or comply with a judicial proceeding, court order, or legal process served on our Website.

Statement Regarding HIPAA Compliance
The Health Insurance Portability and Accountability Act (“HIPAA”) controls the collection, use, and distribution of individually identifiable health information by certain health care providers, called “covered entities” under the statute.

The Partnership is not a covered entity as that term is defined under HIPAA. As a result, and because you (instead of a third party) have willingly and knowingly provided the information we collect, HIPAA does not apply to our services.

Updating Your Personal Information and Contacting The Partnership

You can always contact us in order to delete your Personal Information from our systems, update the Personal Information that you have provided to us, and change your preferences by emailing us at info@partnershipforpalliativecare.org. Such changes will not have any effect on other information that The Partnership maintains. If you have a complaint or problem you may email us at info@partnershipforpalliativecare.org and the customer service department will forward your complaint to the appropriate internal The Partnership department for a response or resolution. We try to answer every email in a timely manner but are not always able to do so. If you do not receive adequate resolution of a privacy related problem, you may write to us at:

The Partnership for Palliative Care
6 W 48th St # 12
New York, NY 10036-1802
(212) 843-0403

You should be aware that it is not technologically possible to remove each and every record of the information you have provided to The Partnership from our servers. The need to back up our systems to protect information from inadvertent loss means that a copy of your Personal Information may exist in a non-erasable form that will be difficult or impossible for us to locate. Nevertheless, we promise that upon receiving your request, all Personal Information stored in the databases we actively use for research and daily business activities, and other readily searchable media, will be deleted.
© The Partnership for Palliative Care. All rights reserved.

Last updated: September 21, 2011.

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